Big Apple Oranges – The resource for NYC special needs children and their families

And so, the journey begins…..

, Posted in: Uncategorized, Author: admin (May 7, 2013)

It was our third visit to the IBR for this Novartis study, but according to record-keeping, because we were given the drugs – or the placebo – to take home, it is day one.

 

We had to fill out more questionaires and Luke went on his own for an IQ eval. He did it without much fuss and without his normal appendage – his ipad or DVD player. My gut tells me that the results were not indicative of a highly-functioning child, but that isn't news. We all have established that Luke is severely affected by Fragile X. And the silver lining associated with that is the boost we hope to see with the drug.

 

So there's drug A and B twice a day for one week followed by drug C and D for a week. Then we go back again and get some more capsules. It is a double-blind test. No one knows what he is taking. But if he suddenly starts to talk, or shower himself, then I'll know.

 

This doesn't come without anxiety. I mean, we've waited 12 years for this day, what if…. ? No, I won't go there….

Comments - 0 »


Luke qualifies

, Posted in: Uncategorized, Author: admin (May 3, 2013)

We got the call. We start Tuesday.

I am excited, anxious, scared, hopeful, worried…………….

Comments - 0 »


Pages

  • About
  • Acronyms of special education
  • Advertise with us
  • Blog
  • Contact us
  • Guestbook
  • Helpful resources
  • Home
  • News updates
  • News updates – bad
  • Parent lectures,workshops and events
  • Privacy policy
  • Step Four: Planning ahead and additional services
  • Step One: Getting an evaluation – If you think your child needs help: how to get an evaluation and the services your child needs.
  • Step Three: The HCBS Medicaid waiver
  • Step Two: Pre-school and school
  • Terms and conditions
  • Test

Categories

  • No categories

Archives

  • April 2014
  • January 2014
  • August 2013
  • June 2013
  • May 2013
  • April 2013
  • March 2013
  • February 2013
  • October 2012
  • August 2012
  • January 2012
  • December 2011
  • October 2011

Blogroll

  • Documentation
  • Plugins
  • Suggest Ideas
  • Support Forum
  • Themes
  • WordPress Blog
  • WordPress Planet

Meta

  • Log in
  • Valid XHTML
  • XFN
  • WordPress
Home | Entries RSS | Comments RSS
Big Apple Oranges – The resource for NYC special needs children and their families © 2016
Big Apple Oranges – The resource for NYC special needs children and their families powered by WordPress
Designed By Yellow Blog